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FH Europe - The European FH Patient Network

FH Europe - The European FH Patient Network

FH Europe - once voice in Europe on FH

Familial hypercholesterolemia (inherited, dangerously elevated cholesterol) is a huge public health problem. First, it is a common condition affecting about 1 in 250 people. Second, despite all the available research and knowledge, it remains vastly undetected. For every 10 persons born with FH, 9 are undiagnosed by their doctors. In consequence – even though life-saving medications to lower cholesterol in those with FH are available, this lack of disease awareness leads to under treatment of people with the condition. Further, despite the just published 2019 EAS-ESC Guidelines on management of dyslipidaemia, the latest research shows, that high risk patients with FH do not receive all available treatment options due to the high price of some of the cholesterol lowering drugs.

FH Europe and patient groups in the network are raising awareness of FH through activities including: The 9 actionable recommendations listed in the Global call to action, have been converted into interactive cards to highlight the importance of acting collaboratively now so we stop premature cardiovascular disease tomorrow.

A Global Call to Action Interactive Cards